ALSP Community &
Resources
ALSP is a rare disease,
but you are not alone.
Connect with the ALSP community – patients, families, caregivers, researchers and patient advocacy organizations – for support, education and to share your story.
ALSP, Leukodystrophy and Rare Disease Patient Organizations
Upcoming Community Engagement Opportunities
No current events scheduled. Join the ALSP community to stay updated.
For more information on ALSP, click to open a Guide for Understanding ALSP.
If you are a caregiver or family member and are looking for ways to support your loved ones with ALSP and build a care team, click to open an ALSP Guide for Caregivers and Family Members.
Stay Informed
Still have questions? We know that living with ALSP requires support and access to up-to-date information. Contact us to learn more about the latest research, tools, resources, and events.